Ïã¸ÛÁùºÏ²ÊÖÐÌØÍø

Raising the profile and research into α1-antitrypsin deficiency

Alpha-1 AwarenessÌý

Alpha-1 AwarenessÌýis a charity formed to provide information and support to sufferers of α₁-antitrypsin deficiency. They provideÌýsupport forÌýAlpha-1 patients and their carers, improve the understanding of Alpha-1Ìýfor both patients and medical professionalsÌýand fund vitalÌýresearch into this disease.

Professor Lomas and his team at Ïã¸ÛÁùºÏ²ÊÖÐÌØÍø, have receivedÌýgenerous donations ofÌý£45,000Ìýover the last 3 years from Alpha-1 Awareness, which has enabled our groupÌýto advance understandingÌýof the polymer formation thatÌýunderlies α₁-antitrypsinÌý deficiency.

On Monday 3rd February 2020, Alan and Emma Wooler of Alpha-1 Awareness cameÌýto Ïã¸ÛÁùºÏ²ÊÖÐÌØÍø (University College London) to present Professor David Lomas with a cheque for £10,000 to go towards his research for a cure for Alpha-1.

“We are very pleased that over the last 3 years we have been able to donate £45,000 to Professor Lomas and his team at Ïã¸ÛÁùºÏ²ÊÖÐÌØÍø, who have made some great advancements."Ìý5.2.2020Ìý Alan Wooler

α₁-antitrypsinÌýclinic

An Alpha-1 clinic has been established at the Royal Free Hospital in North London. ÌýThe clinic is run by Professors , and David LomasÌý and has been designed to cover all aspects of α₁-antitrypsin deficiency. Ìý It is a joint clinic run by hepatologists (liver doctors) and respiratory physicians.

The clinic also offers opportunities to take part in research studies aimed at understanding α₁-antitrypsin deficiency and developing a cure ()

Ìý