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Psychiatry

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About us

We are a team of researchers from the UK, Australia and the Netherlands. Most of us have been researching intellectual disability and autism for many years. Our collaborative research on school attendance started in 2015, under the name Kites (Kids and Teens at School). We launched a big study in Victoria, Australia, investigating school attendance among children with intellectual disability in special schools. Then in 2017 we did a study in the UK focused on school attendance of autistic children.ÌýThese studies are now complete.ÌýThey gave us unique insight into the difficulties families and children with intellectual disability and/or autism face going to school.

Our new study looked at the impact of COVID-19 on these children’s educational experiences. This time we also recruitedÌýparents whose child was not registered with a school (Elective Home Education).ÌýThis current research was funded by the (ESRC), as part of ’s rapid response to COVID-19.Ìý Ìý


ÌýAbout the current project

The COVID-19 pandemic brought many disruptions to children’s education, including the education of autisticÌýchildren and/or children with intellectual (learning) disability. In 2021, we launched an important new study to understand the educational experiences of autistic children and/or children with an intellectual disabilityÌýabout a year after the COVID-19 pandemic started in the UK. The study was completed in 2022.

Education changed dramatically due to the COVID-19 pandemic. Schools closed in 2019/20. There was compulsory return to school in September 2020 with measures in place to control infection and new regulations about COVID-19-related absences. School attendance in the first term of 2020/21 was lower compared to other years. Many children were de-registered from school. In early 2020/21, there was a second prolonged period of school closures across the UK. The pandemic has caused many disruptions to children’s education.ÌýÌý

Before the pandemic, many autisticÌýchildren and/or children with intellectual disability missed school. Then the pandemic disrupted everyone’s education. Approximately one year after the pandemic started, we investigated:

  • School attendance and reasons for absence among autistic children and/or children with intellectual disabilityÌýwho were registered with a school in spring 2021.
  • Home learning experiences among autistic children and/or children with intellectual disabilityÌýwho were not registered to attend a school in spring 2021 but had to learn from home because of school closures due to national lockdowns.Ìý
  • The experience of Elective Home Education in families whose autistic childÌýand/or childÌýwith intellectual disabilityÌýwas de-registered from school sometime after the pandemic started (after March 2020) or before the pandemic.

The study took place between 2021 and 2022. An online survey was live over the summer of 2021. We collectedÌýdata from approximately 1,234 parents of 5 to 15 year-old children across all 4 UK countries.Ìý

We worked closely with our Expert Parent Advisors who guided all aspects of the study: design, survey, data analysis, interpretation and dissemination. Findings are being shared through this website, in journals and with education policymakers.ÌýThe study provided evidence on the impact of COVID-19 on school attendance and home education, highlighting areas for improvement in educational policy and practice.

This research was funded by the (ESRC), as part of ’s rapid response to COVID-19.Ìý


Meet the team

Ïã¸ÛÁùºÏ²ÊÖÐÌØÍø Team
Vaso Totsika

Vaso Totsika

Prinicipal Investigator

v.totsika@ucl.ac.uk

vicky_nicholls.jpg

Vicky Nicholls

Parental Involvement Advisor

v.nicholls@ucl.ac.uk

Nancy Kouroupa

Nancy Kouroupa

Research Fellow

athanasia.kouroupa.12@ucl.ac.uk

Laura Paulauskaite

Laura Paulauskaite

Research Assistant

laura.paulauskaite.16@ucl.ac.uk

Amanda Timmerman

Amanda Timmerman

Research Assistant

amanda.timmerman.20@ucl.ac.uk

Paula Beharry

Paula Beharry

Project Administrator

p.beharry@ucl.ac.uk

Co-Investigators
Amanda Allard

Amanda Allard

Deputy Director,ÌýCouncil for Disabled Children

AAllard@ncb.org.uk

Ìý

Kylie Gray

University of Warwick

K.Gray.1@warwick.ac.uk

Richard Hasting

Richard Hastings

University of Warwick

r.hastings@warwick.ac.uk

David Heyne

David Heyne

Leiden University

HEYNE@FSW.leidenuniv.nl

Glenn Melvin

Glenn Melvin

Deakin University

glenn.melvin@deakin.edu.au

Ìý

Bruce Tonge

Monash University

bruce.tonge@monash.edu

Ìý