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Support for patients and families with Bestrophinopathies
Support听and advice听
贰测别-驰笔础骋听听An advisory group for children with eye conditions which meets four times a year in London. 听 |  |
Macular Society听Offer听information,听support, counselling听and advice for patients with macular disease.听Support research into macular disease.听 听听 |  |
Macular Society WAYP听Networking and information for听working age and young people听with macular disease, 听听 Contact:听colin.daniels@macular society.org听 Advice and Information Service听0300 3030 111听 |  |
Retina UK听Provide support for those affected by inherited sight loss.听 听 |  |
RNIB听Support for people with vision loss.听 听 |  |
Friends of Moorfields听Supports patient and staff at Moorfields Eye Hospital.听 听 |  |
Rare Disease听The national campaign for patients with rare disease, raising the profile of rare disease across the UK.听 听 |  |
Rare Disease Day听A yearly event to听raise awareness听amongst the general public and decision-makers about听rare diseases and their impact on patients' lives.听 听 |  |
Social Media Groups听
Best disease (vitelliform macular dystrophy) BVMD - Facebook Group听A patient led听Facebook support group to share听experiences and information听听 听 |  |
Macular Society - Working Age & Young People Group - Facebook GroupThe Macular society runs a working age and young people听group on Facebook听 听 |  |
Charities funding research into听inherited macular diseases听
Macular Society听Funds听research into macular disease, including听bestrophinopathies听 | |
Fight for听Sight听Funds research to prevent sight loss and treat eye disease.听 听 |  |
Moorfields Eye Charity听Funds research projects at 香港六合彩中特网 Institute of Ophthalmology and Moorfields Eye Hospital.听 听 |  |
Retina UK听Fund research into inherited vision loss.听 听 | |