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This section provides information about the working project groups and the structure that oversees the project's progress, activities, and any other relevant procedures.
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- Project Management Team
The project management team (PMT) comprises the research leaders in the UK and Italy with a smaller听number of nominated representatives from the Project Working Group. Integrated by:听
Adela Ca帽ete Nieto, Paediatric Oncology and Hematology Unit, Hospital UiP La Fe, Valencia, Spain.听
Lisa Lyngsie Hjalgrim, Department of Pediatrics and Adolescent Medicine, University of Copenhagen, Rigshospitalet, Copenhagen, Denmark.
Zsuzsanna Jakab, Department of Pediatrics, Semmelweis University, Budapest, Hungary.听
Bernward Zeller, Division of Pediatric and Adolescent Medicine, Oslo University Hospital, Oslo, Norway.
Charles Stiller, National Calcer Registration and Analysis Service, London, England.听
Core Team (Prof Kathy Pritchard-Jones, Dr Gemma Gatta, Laura Botta, Fabio Didon猫 and Angela Lopez-Cortes)
- Project Working Group
The Project Working Group (PWG) includes representatives from each contributing cancer registry, oncology leads from collaborating clinical study groups and representatives from communication and dissemination partners. This group convenes quarterly throughout the Project.听听听
Current participants
Australia:听Australian Childhood Cancer Registry.
Austria:听Austrian Cancer Registry.
Belgium:听Belgian Cancer Registry.
Boston, MA (USA):听Dana-Farber Cancer Institute.
Brazilian cancer registries:
听 听RCBP de Aracaju
听 听RCBP de Barretos
听 听RCBP de Bel茅m
听 听RCBP de Belo Horizonte
听 听RCBP de Campinas
听 听RCBP de Curitiba
听 听RCBP de Distrito Federal
听 听RCBP de Fortaleza
听 听RCBP de Jahu
听 听RCBP de Jo茫o Pessoa
听 听RCBP de Mato Grosso
听 听RCBP de Recife
Bulgaria:听Bulgarian Cancer Registry
Canada:听Ontario Children Cancer Registry _ POGO.
Croatia:听Croatian Cancer Registry.
Czech Republic:听Czech National Cancer Registry.
Denmark:听Danish Childhood Cancer Registry and Department of Pediatric Oncology; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark & Department of Clinical Medicine, Faculty of Health, Aarhus University and University Hospital, Aarhus, Denmark.
Estonia:听Estonia National Institute for Health Development.
France:听French National Registry of Childhood Cancer 鈥� Solid tumours;听Hematopoietic Malignancies.
Germany:听German Childhood Cancer Registry, Mainz.
Greece:听Greek Nationwide Registry for Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).
Hungary:听Hungarian Child Cancer Registry.
Italy:
听 听Basilicata Cancer Registry.
听 听Bergamo Cancer Registry.
听 听Campania Childhood Cancer Registry.
听 听Childhood Cancer Registry of Piedmont.
听 听Cremona & Mantova Cancer Registry.
听 听Friuli Venezia Giulia Cancer Registry, CRO Aviano National Cancer Institute.
听 听Integrated Cancer Registry CT-ME-EN.
听 听Innovation, Research and Teaching Service, Teaching Hospital of the Paracelsus Medizinischen Privatuniversit盲t, Bolzano-Bozen.
听 听Liguria Cancer Registry, Ospedale Policlinico San Martino IRCCS.
听 听Monza-Brianza Cancer Registry.
听 听Palermo Province Cancer Registry.
听 听Pavia Cancer Registry.
听 听Puglia Cancer Registry.
听 听Registro tumori ATS della Citt脿 metropolitana di Milano.
听 听Registro Tumori ATS Insubria.
听 听Registro tumori dell'Emilia-Romagna, Unit脿 di Piacenza.
听 听Registro tumori dell'Emilia-Romagna, Unit脿 di Parma.
听 听Registro tumori dell'Emilia-Romagna, Unit脿 di Reggio Emilia.
听 听Registro tumori dell'Emilia-Romagna, Unit脿 di Modena.
听 听Registro tumori dell'Emilia-Romagna, Unit脿 di Ferrara.
听 听Registro tumori dell'Emilia-Romagna, Unit脿 della Romagna, IRCCS IRST Meldola.
听 听Registro Tumori di Ragusa e Caltanissetta.
听 听Registro Tumori Regione Marche.
听 听Siracusa Province Cancer Registry.
听 听Toscana Cancer Registry.
听 听Trapani Cancer Registry.
听 听Trento Cancer Registry (Trento CR), Servizio Epidemiologia Clinica e Valutativa, APSS Trento.
听 听Veneto Cancer Registry, Regional Epidemiological Service, Azienda Zero, Padova, Italy.
Ireland:听Ireland Cancer Registry.
Japan:听National Cancer Center; Osaka Cancer Registry.
Malta:听Malta National Cancer Registry, Health Information and Research.
Norway:听Norwegian Cancer Registry.
Poland:听Polish Childhood Cancer Clinical Database provided by the Polish Society of Paediatric Oncology and Haematology (PSPOH) and the Institute of Mother and Child.
Portugal:听Portuguese Pediatric Cancer Registry.
Romania:听Romanian Child Cancer Registry.
Slovenia:听Cancer Registry of Republic of Slovenia.
Spain:
听 听Basque Country, Euskadi-CIBERESP Cancer Registry.
听 听Childhood and Adolescents Cancer Registry 鈥� CISCV.
听 听Girona Cancer Registry, CIBERESP, ICO, IDIBGI.
听 听Granada Cancer Registry, EASP, CIBERESP, ibs.GRANADA, UGR.
听 听Madrid Childhood Cancer Registry.
听 听Murcia Cancer Registry, CIBERESP, IMIB-Arrixaca.
听 听Navarra Cancer Registry, ISPLN, CIBERESP, IdiSNA.
听 听Spanish Registry of Childhood Tumours (RETI SEHOP), University of Valencia, Faculty of Medicine.
听 听Tarragona Cancer Registry, HUSJR, IISPV.
Sweden:听Swedish Childhood Cancer Registry 鈥� SCCR, Karolinska Institute, Stockholm, Sweden.
Switzerland:听Childhood Cancer Registry, Institute of Social and Preventive Medicine, University of Bern.
The Netherlands:听The Netherlands Cancer Registry.
United Kingdom:
听 听England: National Disease Registration Service, Transformation Directorate, NHS England.
听 听Northern Ireland Cancer Registry.
听 听Scotland: Scottish Cancer Registry.
听 听Welsh Cancer Intelligence and Surveillance Unit, Public Health Wales.听
- Independent Advisory Board
An Independent Advisory Board (IAB) that includes a cancer registry director not directly involved in the day-to-day project, parent and survivor representatives, clinical executive-level members of a national paediatric oncology society, a clinical trial study group and a medical director-level clinician involved in the听organisation of childhood cancer services. Integrated by: 听
Anna Gavin, Northern Ireland Cancer Registry School of Medicine, Centre for Public Health, Queen's University Belfast, Belfast, Northern Ireland.
Piotr Czauderna, Department of Surgery and Pediatric Urology, Medical University of Gdansk, Poland.听
Fran莽ois Doz, SIREDO Center (Pediatric, Adolescent and Young Adults Oncology), Institut Curie, University of Paris, Paris, France.听
Riccardo Haupt, Epidemiology and Biostatistics Unit and DOPO Clinic, IRCCS Istituto Giannina Gaslini, Genova, Italy.听
Wendy Tarplee-Morris, The Little Princess Trust, Hereford, England.听
Christian M眉ller, Gert und Susanna Mayer Stiftung, Wuppertal, Nordrhein-Westfalen, Germany.听
Martin McCabe, Division of Cancer Sciences, University of Manchester, Manchester, England.听
Manola Bettio, European Commission, Joint Research Centre, Ispra, Varese, Italy.听
Core and Project Management听Team.
- Patient and Public Involvement and Engagement in Research (PPIE)
There is also representation by听Patient and Public Involvement and Engagement in Research (PPIE) structures.听听
- Data Flow Diagram听
To overview a graphic representation of the data flow between cancer registries and the data controller, please follow this link:听
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