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Patients and Carers
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Lay Summary
As people live to a greater age there is an increased risk of suffering more than one health condition at a time. Known as multimorbidity this has a serious effect on the daily lives of patients, their families, and their carers. The Multimorbidity Mechanism and Therapeutics Research Collaborative (MMTRC) is a UK-wide research project funded for 3 years by the Medical Research Council. 听The project will examine ways to improve the sequence and patterns of multimorbidity and the evidence obtained will aid the care of patients with multiple health conditions. 听We will also seek to address the problem of coordinating treatments so that treatment for one condition does not cause difficulties in the treatment of another condition suffered by the same patient. 听The frequency of this 鈥渃ompetition鈥� between health conditions will be established and solutions identified. 听In doing this we hope to identify medicines that can treat more than one condition and investigate the potential of new uses for existing safe medicines.
The research听
Our research will utilise pseudonimised patient data recorded electronically by the NHS as well as data from genetic studies and clinical trials. We will look across the different types of evidence to check consistency to ensure our recommendations are sound. Where uncertainties remain we will recommend new clinical trials or genetic studies. In this way we hope to improve the outlook for patients, regardless of their particular combinations of health conditions by maximising the benefits from effective treatments.
Two patient participants, Amanda Roberts and Ayath Ullah,听 are co-applicants on this project.听
Patient and Public interest in MultiMorbidity (PiMM)
A Patient and Public interest in MultiMorbidity (PiMM) patient and public advisory group exists to help shape the research process (planning, delivery, dissemination) and monitor progress of the project, and assist in ensuring that the findings from the project are widely disseminated.听 The following videos provide a carers perspective on multimorbidity
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The Team
Natalie Fitzpatrick
Natalie has more than 20 years鈥櫶齟xperience managing complex research programmes involving large linked electronic health record (EHR) data. 听Natalie is Phenomics Programme Manager at the 香港六合彩中特网 Institute of Health Informatics where she manages the Health Data Research UK (HDR UK) national Phenomics Implementation projects across 6 UK sites and leads on facilitating research collaborations for the CALIBER platform (/health-informatics/caliber).听 Natalie is also patient and public involvement lead at 香港六合彩中特网 and coordinates the Phenomics for People Action Group and Patient and public interest in MultiMorbidity Lay advisory committee.听
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Amanda Roberts
Amanda Roberts is one of the two lay co-applicants on the MMTRC project.听 Her experience as a patient and carer is mainly around atopy - eczema, asthma, hay fever, food allergy and anaphylaxis.听 She has always been fascinated by the possibilities of health data and is thrilled to be involved with such a great team.
Mary Mancini
Mary is in her mid-forties.听 Her experience of multimorbidity covers mental health issues (anxiety, depression and psychosis)听 and Baretta鈥檚 syndrome , a malformation of the oesophagus that causes excess 听reflux, with a hiatus hernia.听 Weight gain and oversleeping can be consequences of these conditions.
Margaret Ogden
Margaret comes from Co Durham. Her experience of multimorbidities includes Wegener鈥檚 Granulomotosis, depression, hypertension, type 2 diabetes, high cholesterol. Being a patient and public involvement member of the Medical Research Council multimorbidity funding panel prompted her to join this dynamic public involvement group at 香港六合彩中特网 University, London.
Martin Cox
During twenty years of supporting public and patient engagement in research, Martin has seen the frustration and misery suffered by patients with multimorbidity. Previous research has, without significant success, attempted to address the 鈥渟ilo鈥� mentality in secondary care, which has been a principal contributor. Progress has, until now, been hindered by access to, and existence of, reliable data. Martin welcomes the opportunity to support the public engagement in this wide-ranging research.
Rashmi is from South London with very diverse socio-economic and health deprivations听communities. As a carer for his mother with multiple听long-term conditions including Chronic Obstructive Pulmonary Disease (COPD) and Heart Failure (CVD), he has first-hand experience of challenges patients and families are having to manage in their lives every-day听and how with little support, these can make significant improvements. Rashmi is a Trustee of large Patients and Public Participation Group (PPG) Network working with GP Practices and primary care health care service providers. Rashmi is keen to ensure concerns and challenges of diverse populations are considered in all areas of health and care research.
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Lynne lives in East Devon and after serving six years as a Governor of her local NHS Foundation Trust hospital and being successfully treated for cancer became involved in PPI. 听 For the last ten years she was the carer for her husband, who sadly died earlier this year, he had Parkinson鈥檚 听with Lewy Body dementia and other co-morbidities. 听Looking after someone with multi-morbidity, particularly when they also have dementia, is extremely stressful and Lynne is very hopeful that this research will bring about changes in social care for this group of people听
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Ayath Ullah
Jean Gallagher
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The team meets quarterly
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