Researchers at the LMCB are studying a number of severe disorders. They actively engage with patient and family groups in their research in many different ways, including:
- consultation
- collaboration
- sharing recent discoveries
- providing expertise to patient organisations
听
Resources for Batten Disease:
听- gateway for clinicians, families, researchers interested in Batten disease.听- European project focused on developing treatments for Batten disease. - charity that aims to support families, raise awareness and faciliate research into Batten disease.
听
听
听
Resources for Von Willebrand Disease:
听
Resources for platelet storage disorders:
听
Bleading disease support:
听